Maryland Governor Proclaims June 11 Is KBG Syndrome Awareness Day
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The proclamation notes that the State of Maryland is pleased to join with the KBG Foundation to raise public awareness and understanding. KBG Syndrome is a rare genetic disorder caused by a mutation on the ANKRD11 gene, associated with a spectrum of challenges, including developmental delays, cognitive disabilities, behavioral disorders, autism, seizures, hearing loss, skeletal anomalies, heart complications and gastrointestinal problems. Most people with KBG share at least some physical traits, including a
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The KBG Foundation is a 501(c)(3) nonprofit organization, dedicated to providing support, assisting in research programs and advocating to raise awareness about KBG Syndrome. Learn more at kbgfoundation.com.
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The KBG Logo is free to use for web and print, proper attribution to the KBG Foundation is requested. To download: right click and use the save as option. Contact the KBG Foundation for other graphic and color options.
BALTIMORE, Maryland, June2, 2022 -With a proclamation signed by Governor Larry Hogan, the State of Maryland has officially recognized June 11, 2022, as KBG Syndrome Awareness Day.
The KBG Foundation, a U.S.-based nonprofit organization with international partnerships working to improve the lives of people with KBG Syndrome, is thrilled that Maryland recognizes the need to drive awareness of the condition, which is key to entice research into treatments and increase support for people living with the syndrome.
“Thank you to Governor Hogan for recognizing that awareness is so important when it comes to supporting families and finding a treatment for KBG Syndrome,” said Annette Maughan, CEO and founder of the KBG Foundation.