The KBG Syndrome Foundation is pleased to present The Clinical Impact of the Patient-Led Rare Disease Organization for KBG Syndrome poster by P. Fumo Fox, T. Kuznik and A. Maughan. This poster was created through the use of the private social media group: KBG Syndrome Family Group. Membership in this group is limited to individuals with a KBG diagnosis and their caregivers. No one with a KBG Syndrome diagnosis is denied entry as long as they agree to adhere to the standard rules. This poster was developed through the hard work and dedication of the administrators of the group and KBG Foundation Board Members. Downloading the print version and hi res graphic are allowed with proper attribution (@KBGfdn or #KBGfdn). To reprint please contact email@example.com. Please do not make any alterations to the document or poster. Contact firstname.lastname@example.org for any questions or comments.