help The Foundation

November 21, 2022: The KBG Foundation is pleased to let our families far and wide know about an opportunity which is now underway to participate in a behaviour study carried out by the Cerebra Network for Neurodevelopmental Disorders (

Through collaboration with Dr Karen Low, a clinical geneticist on our scientific advisory board, KBG Syndrome has been chosen as a specific syndrome to be included within the BEOND study (a parent survey study looking at behavior and emotional outcomes in neurodevelopmental syndromes).

Click here to watch an informational video about the study and to learn how to participate. 

We strongly encourage our KBG families to participate. Behavior challenges are among the most frequently reported issues that people with KBG face.

Thank you to Dr. Low and the team at Cerebra Network for Neurodevelopmental Disorders.

To participate in the BEOND Study, scan the QR Code or visit:


Take part in the study