Awareness Ribbon

What is KBG Syndrome?

This is a tri-fold pamphlet describing the Behavior in KBG Syndrome. Suitable for Doctor/Professional as well as patient handout. Available in other languages.

What is KBG Syndrome?

This is a tri-fold brochure describing the Occult Tethered Cord Syndrome in KBG Syndrome. Suitable for Doctor/Professional as well as patient handout. 

Behavior in KBG Syndrome

This is a tri-fold brochure describing the basics of what is currently known about KBG Syndrome. Suitable for Doctor/Professional as well as patient handout. 

help The Foundation

The KBG Awareness Ribbon is free to use for web and print, proper attribution to the KBG Foundation is requested. To download: right click and use the save as option. Contact the KBG Foundation for other graphic options.


Infographic

Clinical Importance of Patient-Led Organization for KBG Syndrome

This poster was first presented at World Orphan Drug Congress 2022 July 11th-13th in Boston, Massachusetts. It details some of the findings and research that has been developed through the participation of the KBG Syndrome Community. This poster presents tangible proof that patients DO contribute to the understanding, and treatment, of their rare disease. 

The KBG Foundation has created this handy infographic to assist in better understanding KBG Syndrome, it's incidence within the population, and the symptoms and presentations associated with the syndrome. 

The KBG Logo is free to use for web and print, proper attribution to the KBG Foundation is requested. To download: right click and use the save as option. Contact the KBG Foundation for other graphic and color options.


KBG Syndrome - Newly DIagnosed

A multi-page packet designed to help the newly-diagnosed patient adapt to living with KBG Syndrome. Suitable for Patient handout.

Printable INFORMATION

Behavior in KBG Syndrome

Logo