We have all been newly diagnosed at some point, whether it comes after years of searching or shortly after birth, we all want to know what to expect and where to go from here. We have created a documentwith a few tips and a list of potential specialists you may need to get to know. Be sure to join us in the private FACEBOOK GROUP for patients, caregivers and researchers.
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Mercy
Mercy was a baby when they noticed this lovely little girl needed extra help.
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