We have all been newly diagnosed at some point, whether it comes after years of searching or shortly after birth, we all want to know what to expect and where to go from here. We have created a documentwith a few tips and a list of potential specialists you may need to get to know. Be sure to join us in the private FACEBOOK GROUP for patients, caregivers and researchers.
Learn more about what we are doing with BEOND.
A community FOR
a cure for KBG SyndromE
Mercy was a baby when they noticed this lovely little girl needed extra help.
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KBG Syndrome Research