chairman of the Board

Glenn Maughan joined the Board of Directors in June of 2015 after his son, Glenn, was diagnosed with KBG Syndrome at the age of 12. His experience in healthcare and natural sciences has helped the Foundation by providing valuable insight and momentum toward research and awareness. Glenn has been instrumental in establishing partnerships with cutting edge technology companies working to reduce the time to diagnosis for rare diseases.

As an experienced CTO and in -demand technology executive Glenn still found time to serve on the Professional Advisory Board of the Epilepsy Association of Utah from 2012-2015 receiving accolades for his work. He was voted Advocate of the Year in 2014 and given the Dedicated Service Award in 2015. 

​Read Glenn's Meet the Board responses.

glenn maughan