Mercy
Mercy was a baby when they noticed this lovely little girl needed extra help.

MEET KBG FAMILIES

Chloe
Chloe was quadruplet number 4 and the smallest of the siblings.

find

a cure for KBG SyndromE

new

KBG Syndrome Research

Rylee
Before Rylee was born there were some concerns. But all testing was 'normal'.

KBG Foundation and BEOND

We have all been newly diagnosed at some point, whether it comes after years of searching or shortly after birth, we all want to know what to expect and where to go from here. We have created a documentwith a few tips and a list of potential specialists you may need to get to know. Patients and caregivers can join the private KBG SYNDROME FAMILIES FACEBOOK GROUP.. Researchers and clinicians: Connect with our community by joining the KBG PROFESSIONALS FACEBOOK GROUP. 


Build

A community FOR

KBG SYNDROME

Newly Diagnosed with KBG Syndrome

BEOND KBG Study NOW UNDERWAY !​